Sexuality & Illness
Sexuality is part of everyone's life, even when the body or mind undergoes changes. Illnesses can influence how we experience desire and sexuality. However, this does not mean that sexuality disappears. This page provides a brief overview of the topic. If you are interested in learning more, it may be worth talk to a doctor or visit a counseling center.
Important: The list of illnesses here is not exhaustive. If you have questions about another illness related to sexuality, it is a good idea to talk to a doctor or counseling center.
Sexuality-related illnesses
Some illnesses directly affect sexuality or the sex organs. Some primarily affect people with penises, others affect people with vaginas. These include:
- decreased libido
- increased libido
- difficulty reaching orgasm
- difficulty ejaculating
- difficulty with lubrication
- pain during sex
Erectile dysfunction
Erectile dysfunction
Erectile dysfunction is defined as the inability of individuals with a penis to achieve or maintain an erection sufficient for sex over a longer period of time. Occasional erection problems are completely normal and occur in almost all individuals. Erectile dysfunction is only diagnosed when the difficulties occur more frequently and are perceived as bothersome.
The causes can range widely. There are often physical reasons, such as circulatory disorders, diabetes, hormonal changes, or side effects of medication. Psychological factors also play an important role. Often, physical and psychological factors have a combined effect.
Erectile problems can put a strain on self-esteem, relationships, and the way people deal with intimacy and sexuality. Many of those affected feel ashamed and do not talk about it, even though erectile dysfunction is widespread and has nothing to do with personal failure.
Important: Erectile dysfunction is treatable. Depending on the cause, there are various options available, such as medication, counseling, discussions aimed at alleviating psychological stress, or making lifestyle changes. Open discussions with your partner can also help to provide relief.
Vaginismus
Vaginismus
Vaginismus refers to a sexual dysfunction in which the pelvic floor muscles of people with vulvas involuntarily tense as soon as something is inserted into the vagina, for example during penetrative sex, when inserting tampons, or during gynecological examinations. This tensing is not intentional and can make penetration painful or even impossible.
The causes of vaginismus are many and varied. Psychological factors often play a role, such as negative or stressful sexual experiences, insecurity, shame, or a strong feeling of pressure to perform. Physical causes such as pain or gynecological conditions can also trigger or exacerbate vaginismus. Often, several factors work together.
Vaginismus can be very stressful for those affected and can affect self-esteem, sexuality, and relationships. Some sufferers feel misunderstood or ashamed to talk about it.
Important to note: Vaginismus is not a conscious barrier, but an unconscious physical defense mechanism.
Vaginismus is readily treatable. Depending on the situation, education, counseling, sexual or psychotherapeutic support, pelvic floor training, and a taking a sensitive approach to one's own body can help. Involving partners can also be beneficial.
Anyone who experiences difficulties or pain during penetration should seek support. Talking openly about it and accepting help is an important step on the path to a sex life that is self-determined and pleasurable.
Physical illnesses
In addition to acute illnesses such as some sexually transmitted infections (STIs), there are chronic illnesses that can affect sexuality. Here are a few of them:
Diabetes
Diabetes
Sexual dysfunction is one of the most common complications of diabetes, affecting 68.6% of people with the condition
The symptoms can be alleviated by medication to regulate blood sugar levels. Talking to your doctor can help you enjoy a fulfilling sex life. You can find out how to talk about sexuality in the section “Sexuality & Language.”
Cardiovascular diseases
Cardiovascular disease
Sex is healthy for the heart and circulation. However, people with cardiovascular disease are often unsure how much sex is okay for them. In general, sex stimulates the circulation. Your pulse and blood pressure rise and a whole bunch of hormones are released. For most people, though, their pulse doesn't go up as high as you might think, only to about 90 to 130 beats per minute.
People with cardiovascular disease or who have had a heart attack should discuss their exertion limits with their doctor. It is also important to check whether potency-enhancing drugs (e.g., Viagra) can be taken together with other medications. You can find out how best to talk about sexuality in the section “Sexuality & Language."
Wenn beim Sex Brustschmerzen oder Herzrasen auftauchen und diese auch in Ruhe nicht abklingen, sollte der Notruf (112) gewählt werden.
Joint pain & stiffness
Joint pain & stiffness
Some chronic physical and neurological conditions, such as rheumatism, multiple sclerosis, or Parkinson's disease, are associated with pain or stiffness in the joints. Fortunately, there are ways to make sex enjoyable despite these issues. It is important to talk openly with your partner about any problems or concerns you may have. Together, you can try out new positions and reduce feelings of embarrassment or anxiety. In the section “Sexuality & Language," you can find more information on how to talk about sexuality. It may be worthwhile to bring up the topic of sex with your doctor, for example, to discuss adjusting your pain medication and when to take it.
- Personal accounts from people with similar illnesses or information targeted to your specific condition can help you find individual solutions. Here, for example, is some information on sex with rheumatism:
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- Personal accounts from people with similar illnesses or information targeted to your specific condition can help you find individual solutions. Here, for example, is some information on sex with rheumatism:
Inflammatory bowel disease
Inflammatory bowel disease
Intestinal disorders such as Crohn's disease or ulcerative colitis can affect sexuality through pain, psychological stress, or stoma (artificial intestinal opening) issues. Here, too, open and honest discussions with partners and doctors are crucial. It is also particularly important that contraceptive methods are appropriately adapted. For example, the pill is no longer reliable if you have diarrhea. Solutions can often be found to ensure that sexuality can still be fulfilling even with intestinal disease. You can find out how best to talk about sexuality in the section “Sexuality & Language.”
There are special underwear brands that develop undergarments specifically for people with stomas, so they can feel more comfortable.
Mental illness
Sexuality and mental illness are closely linked: illnesses such as depression, anxiety disorders, or anorexia can lead to reduced libido, while manic phases or borderline disorders can lead to increased sex drive. In addition, medication, trauma, and low self-esteem can also affect a person's sex life. It is important to have an open dialogue with professionals to clarify what is causing the problem. It is important to determine whether the illness itself, medication, or psychological factors are affecting sexuality. Then, you can work on this together with doctors and therapists.
It is normal for sexuality to change at different stages of life. The desire for sex, or lack thereof, is also completely normal, even without mental illness.
Self-help groups or peer-to-peer services can help break down barriers and reduce feelings of isolation.
Some illnesses can have such a strong impact on sexuality that they pose particular challenges when it comes to sex. Sexual assistance is available for such situations. These are trained experts who, for example, support people with disabilities in their sexuality. You can find out more about this in the chapter “Sex work”.
Indirect effects
Some effects of the disease on sexuality are not caused by the disease itself, but by indirect consequences, e.g. medication, physical changes, or psychological effects:
Medication:
- Reduced libido
- Erectile and ejaculation dysfunction
- Orgasm dysfunction
- Vaginal dryness
- Hormonal changes
- Fatigue or concentration problems
Side effects can be discussed with doctors. Sometimes it is possible to adjust the medication or dosage to reduce side effects.
Physical changes:
- Pain and fatigue (chronic exhaustion)
- Restricted movement
- Changes in sensitivity to touch
- Hormonal changes
- Changes in the function of the sex organs
- Scars, amputations, weight change
- Stress on the cardiovascular and respiratory systems
- Medical aids (stoma, catheter, drainage)
- Hair loss
Open dialogue with partners and doctors can help you to make adjustments, use aids, etc. in order to experience sexuality more pleasurably.
Psychological changes:
- Stress, anxiety, worries
- Depression, low mood
- Change in self-esteem
- Loss of control/autonomy
- Traumatic experiences
If you feel uncertain , it is worth talking openly with your partner and therapist about feelings of shame, fear, etc., in order to address these issues sensitively and create a safe environment in which sexuality can be enjoyed to the fullest .